LEMS Family in Action
From online gatherings to in-person outreach at medical conferences nationwide, our events bring visibility to LEMS and connection to our community. Join us virtually, support us on the road, or help us bring LEMS awareness to your area. Want to host an LEMS event near you? Email info@lemsfamily.org
- November 28, 2026
- 1:00 pm EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- November 7, 2026
- 1:00 pm EST
Working with LEMS: Patient Discussion
Join fellow LEMS patients for an open conversation about balancing work and life while living with LEMS. Share experiences, exchange practical tips, and connect with others who understand the unique challenges of managing a career while navigating the ups and downs of life with LEMS.
- October 24, 2026
- 1:00 PM EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
Theme: Handling Bad Days & Flare Ups
- January 31, 2026
- 1:00 pm EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- Jun, 02 2020
- 19:00am
Raise funds for saving our world from global warming
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- Jul, 12 2020
- 19:00am
Raise funds for saving our world from global warming
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LEMS Family Association News
LEMS Family Association Raises Awareness at AANEM and LONDC Meetings – Copy
LEMS Family Association Named Top Five Finalist in 2026 Prix Galien Patient First Award A meaningful milestone recognizing the power...
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LEMS Family Association Raises Awareness at AANEM and LONDC Meetings
LEMS Family Association Raises Awareness at AANEM and LONDC Meetings The LEMS Family Association attended the AANEM Annual Meeting in...
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New Podcast for LEMS Community
Introducing Pull Up a Chair, Let’s Talk LEMS: A New Podcast for the LEMS Community The LEMS Family Association is...
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July Chit Chat Recap: Coping with Summer Heat When You Have LEMS
July Chit Chat Recap: Coping with Summer Heat When You Have LEMS Summer can be one of the most challenging...
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Traveling with LEMS: Tips that Help Me Stay Safe and Enjoy the Journey
Traveling with LEMS: Tips that Help Me Stay Safe and Enjoy the Journey By: Tracy, LEMS Patient and Board Member ...
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Preparing for a Medical Appointment with LEMS: Tips from the Community
Preparing for a Medical Appointment with LEMS: Tips from the Community Living with Lambert-Eaton Myasthenic Syndrome (LEMS) often means managing...
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May Chit Chat Recap: How People with LEMS Adapt, Thrive and Stay Connected
Life After Diagnosis: How People with LEMS Adapt, Thrive, and Stay Connected The LEMS Family Association recently hosted a Chit...
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LEMS Family Association Attends MDA Conference
The LEMS Family Association was proud to be represented at this year's MDA Clinical & Scientific Conference in Orlando, FL.
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Recap of LEMS Awareness Day: Virtual Summit
The LEMS Family Association was proud to host our first-ever LEMS Virtual Summit in conjunction with LEMS Awareness Day.
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