LEMS Family in Action
From online gatherings to in-person outreach at medical conferences nationwide, our events bring visibility to LEMS and connection to our community. Join us virtually, support us on the road, or help us bring LEMS awareness to your area. Want to host an LEMS event near you? Email info@lemsfamily.org
- March 30, 2026
- All Day
LEMS Awareness Day
Join the LEMS Family Association and other LEMS patients in celebrating LEMS Awareness Day!
- More Info Coming Soon
- March 7, 2026
- 3:00 pm EST
Young Adults with LEMS Chit Chat - POSTPONED
Join us for our first Young Adults with LEMS Chit Chat. It’s an informal meet up and chance for connection. Please note this chit chat is intended for LEMS patients under the age of 35.
- April 25, 2026
- 1:00 PM EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- January 31, 2026
- 1:00 pm EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- Jun, 02 2020
- 19:00am
Raise funds for saving our world from global warming
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec.
- View Detail
- Jul, 12 2020
- 19:00am
Raise funds for saving our world from global warming
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec.
- View Detail
LEMS Family Association News
Recap of the January LEMS Learn
The LEMS Family Association was proud to host our first LEMS Learn Webinar, featuring Dr. Liz Plowman.
Read More
When an Advocate Becomes the Patient
As a nurse, I've attended my fair share of medical conferences, with rows of booths, panel discussions, clinical updates and...
Read More
LEMS Family Volunteers Travel to Baltimore to Raise LEMS Awareness
In September, volunteers from the LEMS Family Association attended the American Neurological Association (ANA) meeting in Baltimore.
Read More
LEMS Family Association Represented at AANEM
LEMS Awareness Grows as Volunteers Share Resources and Patient Prospective at the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)'s...
Read More
Recap of June Chit Chat
The LEMS patient community gathered for a virtual meeting to share personal stories and compare diagnostic journeys.
Read More
Rare Disease Day On the Hill 2023
Enjoy some photos from our trip to The Hill...
Read More
Rare Disease Day in Times Square 2023
Enjoy some photos from our trip to Times Square...
Read More
Newsletter, January 2023
Welcome to the January, 2023 Newsletter!...
Read More
Newsletter, August 2022
WELCOME to the first volume of our newsletter...
Read More