LEMS Family in Action
From online gatherings to in-person outreach at medical conferences nationwide, our events bring visibility to LEMS and connection to our community. Join us virtually, support us on the road, or help us bring LEMS awareness to your area. Want to host an LEMS event near you? Email info@lemsfamily.org
- August 29, 2026
- 1:00 PM EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
THEME: Caregiving
- March 30, 2026
- 8:00 pm EST
LEMS Awareness Day - Mental Health Discussion
Join us for our second LEMS Awareness Webinar with Jodi Taub, LCSW on maintaining meaningful friendships while living with a chronic disease. This conversation will explore practical ways to nurture relationships, communicate needs, and stay connected while navigating life with LEMS.
- March 30, 2026
- 1 pm EST
LEMS Awareness Day - Education & Research Update
Join us for a special LEMS Awareness Day webinar focused on education and research in LEMS. Hear from Stephen D. Meriney, PhD who will share the current state of LEMS research, and Vanda Lennon, MD, PhD a pioneering LEMS researcher, as they discuss scientific progress and what it means for patients and families.
- January 31, 2026
- 1:00 pm EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- Jun, 02 2020
- 19:00am
Raise funds for saving our world from global warming
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- Jul, 12 2020
- 19:00am
Raise funds for saving our world from global warming
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec.
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LEMS Family Association News
New Podcast for LEMS Community
Introducing Pull Up a Chair, Let’s Talk LEMS: A New Podcast for the LEMS Community The LEMS Family Association is...
Read MoreJuly Chit Chat Recap: Coping with Summer Heat When You Have LEMS
July Chit Chat Recap: Coping with Summer Heat When You Have LEMS Summer can be one of the most challenging...
Read MoreTraveling with LEMS: Tips that Help Me Stay Safe and Enjoy the Journey
Traveling with LEMS: Tips that Help Me Stay Safe and Enjoy the Journey By: Tracy, LEMS Patient and Board Member ...
Read MorePreparing for a Medical Appointment with LEMS: Tips from the Community
Preparing for a Medical Appointment with LEMS: Tips from the Community Living with Lambert-Eaton Myasthenic Syndrome (LEMS) often means managing...
Read MoreMay Chit Chat Recap: How People with LEMS Adapt, Thrive and Stay Connected
Life After Diagnosis: How People with LEMS Adapt, Thrive, and Stay Connected The LEMS Family Association recently hosted a Chit...
Read MoreLEMS Family Association Attends MDA Conference
The LEMS Family Association was proud to be represented at this year's MDA Clinical & Scientific Conference in Orlando, FL.
Read MoreRecap of LEMS Awareness Day: Virtual Summit
The LEMS Family Association was proud to host our first-ever LEMS Virtual Summit in conjunction with LEMS Awareness Day.
Read MoreRecap of the January LEMS Learn
The LEMS Family Association was proud to host our first LEMS Learn Webinar, featuring Dr. Liz Plowman.
Read MoreWhen an Advocate Becomes the Patient
As a nurse, I've attended my fair share of medical conferences, with rows of booths, panel discussions, clinical updates and...
Read More