The Lambert-Eaton
LEMS Family
Association
Please meet us!
The Lambert-Eaton LEMS Family Association was incorporated in the State of Texas, June 14, 2022. The founders, all LEMS patients, and patient advocates are Julianna Kustelski of Denver Colorado, Price Wooldridge of Fort Worth, Texas, and Kristina Patafio of Staten Island, New York. In 2024 Lori Dunham of Florida joined the board, and in 2025 Tracy Sharp of Kentucky joined the board. Our volunteers serving all LEMS patients include Kristin Williams, Kristen Russell, Desiree Taliancich, and Peter Calore.
Madeline Miller is an accomplished nonprofit leader with over a decade of experience driving organizational growth, advancing community engagement, and fostering strategic partnerships. She has dedicated her career to empowering rare disease communities and amplifying the voices of patients and families. Madeline is committed to advancing the mission of The Lambert-Eaton LEMS Family Association and improving the lives of individuals and families affected by all rare diseases.