Join Us in Celebrating
LEMS Awareness Day - March 30
On March 30, we come together to raise awareness of Lambert-Eaton myasthenic syndrome (LEMS) — a rare autoimmune neuromuscular disorder that impacts strength, mobility, independence, and quality of life.
LEMS Awareness Day is about visibility, education, and community. It’s an opportunity to amplify patient voices, support research, and ensure that more healthcare professionals and families recognize the signs and symptoms of this rare disease.
2026 LEMS Awareness Day Virtual Summit
The LEMS Awareness Day Virtual Summit brought the community together for an engaging and informative event featuring two expert speakers. Attendees gained valuable insights into the latest research developments, as well as a meaningful discussion on the emotional toll of living with a rare disease. As our first-ever summit, we were thrilled to receive overwhelmingly positive feedback from participants. We remain committed to building on this success and continuing to provide valuable, supportive resources for the LEMS community.
Research Update
Dr. Stephen Meriney delivered an insightful presentation on current LEMS treatments and emerging therapies, offering a clear and hopeful look at advances shaping the future of care. His session helped attendees better understand both existing options and what may be on the horizon.
Emotional Health Discussion
Jodi Taub led a thoughtful discussion on maintaining relationships while living with a rare disease, sharing practical strategies for navigating communication, emotional strain, and connection. Her presentation resonated deeply with attendees seeking balance and support in their personal lives.