LEMS Family Association Raises Awareness of LEMS at MDA Clinical & Scientific Conference
The LEMS Family Association was proud to be represented at this year’s MDA Clinical & Scientific Meeting in Orlando, Florida, where Kristen Russell and Madeline Miller attended on behalf of the community. This annual event brings together a wide range of stakeholders in the neuromuscular space, including clinicians, researchers, industry leaders, and patient advocacy organizations, all working toward improving care and outcomes for individuals affected by these conditions.
During the meeting, Kristen and Madeline focused on raising awareness of Lambert-Eaton Myasthenic Syndrome (LEMS) by connecting directly with others in the neuromuscular community. They shared information about LEMS and the work of the LEMS Family Association, helping ensure that this rare condition remains visible within broader advocacy and healthcare conversations. These interactions play an important role in increasing understanding and recognition of LEMS among organizations that serve overlapping patient populations.
A key highlight of their time at the meeting was the opportunity to network with other neuromuscular patient advocacy organizations. Building relationships across groups creates opportunities for collaboration, shared learning, and stronger collective advocacy. By connecting with peers, the LEMS Family Association can continue to amplify its impact, exchange resources, and identify new ways to support individuals and families affected by LEMS.
The LEMS Family Association is grateful for the opportunity to participate in this important gathering. Strengthening connections within the neuromuscular advocacy community is a vital step toward increasing awareness, improving diagnosis, and ensuring that patients living with LEMS are better supported now and in the future.