Patient Chit Chats
Connect with the LEMS Community
LEMS Chit Chats are casual, monthly group calls where patients and caregivers come together to talk, listen, and connect. There’s no pressure and no agenda—just real people sharing real experiences in a supportive, understanding space. Whether you’re newly diagnosed or years into your journey, you’re welcome here.
Visit the Events Calendar to See the Schedule for our Monthly Chit Chats
Patient Connection & Support
Find the Resources that Fit Your Needs
LEMS Lifeline
The LEMS Lifeline connects you one-on-one with someone who truly understands your journey. Whether you’re newly diagnosed or facing a new challenge, you’ll be matched with a trained peer who has lived experience with LEMS. These conversations are private, supportive, and centered on listening, not fixing. You don’t have to navigate this alone.
LEMS Learn
LEMS Learn offers clear, trustworthy education to help you better understand LEMS and your care options. Through webinars, workshops, and expert-led sessions, you can build confidence in managing your health and advocating for yourself. Our goal is to turn confusion into clarity and questions into empowerment. Knowledge is a powerful part of your journey.
News & Happenings
Events and Stories that Educate, Connect and Inspire
Recap of the January LEMS Learn
The LEMS Family Association was proud to host our first LEMS Learn Webinar, featuring Dr. Liz Plowman.
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When an Advocate Becomes the Patient
As a nurse, I've attended my fair share of medical conferences, with rows of booths, panel discussions, clinical updates and...
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LEMS Family Volunteers Travel to Baltimore to Raise LEMS Awareness
In September, volunteers from the LEMS Family Association attended the American Neurological Association (ANA) meeting in Baltimore.
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LEMS Family Association Represented at AANEM
LEMS Awareness Grows as Volunteers Share Resources and Patient Prospective at the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)'s...
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Recap of June Chit Chat
The LEMS patient community gathered for a virtual meeting to share personal stories and compare diagnostic journeys.
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Rare Disease Day On the Hill 2023
Enjoy some photos from our trip to The Hill...
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