LEMS Lifeline - Creating One-on-One Peer Connection
LEMS Lifeline connects patients and caregivers with another person who has lived experience with LEMS. These one-on-one connections offer a safe, compassionate space to ask questions, share concerns, and talk openly with someone who understands the realities of life with LEMS.
LEMS Lifeline is especially helpful if you:
- Are newly diagnosed and looking for reassurance or guidance
- Want to talk through challenges with someone who "gets it"
- Prefer private, one-on-one conversation over a group setting
Other Resources
Not quite ready to connect with another patient yet? Or want to find some additional resources to help in understanding your diagnosis? Be sure to check out these helpful sites.
Patient Connection & Support
Find the Resources that Fit Your Needs
Patient Chit Chat
LEMS Chit Chats are monthly, casual group calls where patients and caregivers can connect in a relaxed, supportive space. There’s no pressure to share—come to talk, listen, or just feel understood. These calls are about real conversations, real people, and real connection. If you’re looking for community, encouragement, and a reminder that you’re not alone, this is a great place to start.
LEMS Learn
LEMS Learn offers clear, trustworthy education to help you better understand LEMS and your care options. Through webinars, workshops, and expert-led sessions, you can build confidence in managing your health and advocating for yourself. Our goal is to turn confusion into clarity and questions into empowerment. Knowledge is a powerful part of your journey.