LEMS Family Association Make Meaningful Connections in Baltimore
In September, volunteers from the LEMS Family Association attended the American Neurological Association (ANA) meeting in Baltimore to raise awareness about Lambert-Eaton Myasthenic Syndrome (LEMS) and the work of our growing patient community.
Thanks to the dedication of Tracy and June Sharp and Carol and Joseph Oliver, our team connected with neurologists and healthcare professionals from across the country. They shared valuable information about living with LEMS, patient resources, and opportunities for clinicians to partner with the Association to better support patients.
Later this month, the Association will continue its outreach at the AANEM Annual Meeting. Here, the Association will also participate on the Late Onset Neuromuscular Disease Consortium (LONDC) to help speed time to diagnosis for people with late-onset neuromuscular diseases through earlier referrals to the right specialists.
We’re deeply grateful to our volunteers for representing the LEMS community and helping to strengthen connections between patients and providers.