LEMS Family in Action
From online gatherings to in-person outreach at medical conferences nationwide, our events bring visibility to LEMS and connection to our community. Join us virtually, support us on the road, or help us bring LEMS awareness to your area. Want to host an LEMS event near you? Email info@lemsfamily.org
- January 31, 2026
- 1:00 pm EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- Febraury 28, 2026
- 1:00 PM EST
Patient Chit Chat
Chit Chats are relaxed, patient-led conversations where you can share experiences, ask questions and connect with others who truly understand life with LEMS.
- March 5, 2026
- 1:00 pm EST
Working with LEMS: a Patient Chit Chat
Hear from two LEMS patients as they discuss how they continue to work full-time with their diagnosis. Learn their tips for getting through the week, educating their employer, etc.
- More Info Coming Soon!
- March 30, 2026
- All Day
LEMS Awareness Day
Join the LEMS Family Association and other LEMS patients in celebrating LEMS Awareness Day!
- More Info Coming Soon
- Jun, 02 2020
- 19:00am
Raise funds for saving our world from global warming
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- Jul, 12 2020
- 19:00am
Raise funds for saving our world from global warming
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LEMS Family Association News
Recap of the January LEMS Learn
The LEMS Family Association was proud to host our first LEMS Learn Webinar, featuring Dr. Liz Plowman.
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When an Advocate Becomes the Patient
As a nurse, I've attended my fair share of medical conferences, with rows of booths, panel discussions, clinical updates and...
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LEMS Family Volunteers Travel to Baltimore to Raise LEMS Awareness
In September, volunteers from the LEMS Family Association attended the American Neurological Association (ANA) meeting in Baltimore.
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LEMS Family Association Represented at AANEM
LEMS Awareness Grows as Volunteers Share Resources and Patient Prospective at the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM)'s...
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Recap of June Chit Chat
The LEMS patient community gathered for a virtual meeting to share personal stories and compare diagnostic journeys.
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Rare Disease Day On the Hill 2023
Enjoy some photos from our trip to The Hill...
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Rare Disease Day in Times Square 2023
Enjoy some photos from our trip to Times Square...
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Newsletter, January 2023
Welcome to the January, 2023 Newsletter!...
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Newsletter, August 2022
WELCOME to the first volume of our newsletter...
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