About Us
The Lambert-Eaton LEMS Family Association
Our Community at a glance
LEMS is rare, but you shouldn't have to face it alone.
The LEMS Family Association brings together patients, caregivers, and medical professionals to build community, share real experiences, raise awareness, and inspire meaningful change for people living with LEMS.
280+
patients, caregivers involved.
38 states and 12 countries
represented in our community.
Here for You
Your road to finding this community may have been long, but we're glad you are here and hope you'll feel supported, informed and connected.
What We Do
Supporting Others in their LEMS Journey is our Mission.
Our Board of Directors and volunteers are dedicated to creating a welcoming, supportive community for everyone living with LEMS. We believe that sharing lived experience empowers patients, improves quality of life, and helps people feel more confident in advocating for their care.
Support
Connect with a trained patient representative through the LEMS Lifeline Program or meet others through out monthly Chit Chats. By sharing stories and experiences, we remind one another that none of us is alone with LEMS.
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Education
Stay informed through LEMS Learn Webinars, where medical and integrative health professionals discuss current approaches to LEMS care. Explore our Online Resource Library to read practical tips, personal experiences, and ways others continue to thrive after diagnosis.
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Research & Advocacy
Our collective voice helps inform clinicians, researchers, and industry about the real lived experience of LEMS. By participating in our patient registry, you help support future treatment improvements and expand understanding of this rare condition.
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