June LEMs Community Chit Chat
The LEMS patient community gathered for a virtual meeting to share personal stories and compare diagnostic journeys. As many patients shared a common theme in their journey to diagnosis – the LEMS Family Association solidified their plans to start advocating to a new community – the family physician or nurse practitioner.
Common Threads in the LEMS Journey
Most attendees described their first symptoms as leg weakness, difficulty with stairs, balance problems, or extreme fatigue. Diagnosis was often delayed—sometimes by months, sometimes by years.
A Shift in Awareness Strategy
Historically focused on neurologists, this year we are expanding outreach to include family physicians and primary care doctors.
You are not alonegether, we are making LEMS more visible every day.
A Shift in Awareness Strategy
Historically focused on neurologists, this year we are expanding outreach to include family physicians and primary care doctors.
A Global Network
Participants joined from the U.S., Canada, and the U.K., reflecting the truly global nature of the LEMS community.
A Growing Community
The LEMS community continues to grow stronger, finding support, resources, and a powerful voice in one another.