LEMS Awareness Grows as Volunteers Share Resources and Patient Prospective
The LEMS Family Association was proud to be represented at the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in San Francisco this October, where our volunteers helped elevate the profile of both LEMS and our growing patient community. Throughout the conference, we staffed a booth on the exhibit floor, engaging with clinicians, researchers, and industry partners to spark meaningful conversations, distribute educational materials, and build connections that support improved care and awareness.
In addition to our presence on the exhibit floor, patient advocate Kristen Russell participated in the Late-Onset Neuromuscular Disease Consortium (LONDC) Committee meeting, offering a crucial patient perspective in discussions that help shape neuromuscular care. We extend our deepest gratitude to Kristen and to Tracy Sharp for their time, energy, and leadership. Their dedication ensured that the voices and needs of people living with LEMS were represented throughout the meeting.