LEMS Learn: Education Grounded in Patient Experience
LEMS Learn is our educational webinar series designed to empower the LEMS community with knowledge and practical insights. Sessions may feature medical professionals, researchers, patient advocates, or individuals with lived experience, covering topics relevant to life with LEMS.
LEMS Learn is ideal for you:
- Want to better understand LEMS, treatments and other beneficial services
- Are seeking tools to better advocate for yourself or a loved one
- Value learning from alongside others
Each live session includes time for questions and discussion, helping bridge education with real-patient experience.
Upcoming LEMS Learn
Past LEMS Learn Webinars
Re-watch our session with Dr. Liz Plowman on how to navigate physical therapy as a LEMS patient. Dr. Plowman talks through her experience as a physical therapist and neuromuscular patient and give tisp and tricks on how to educate and work with your local PT.
Patient Connection & Support
Find the Resources that Fit Your Needs
Patient Chit Chats
LEMS Chit Chats are monthly, casual group calls where patients and caregivers can connect in a relaxed, supportive space. There’s no pressure to share—come to talk, listen, or just feel understood. These calls are about real conversations, real people, and real connection. If you’re looking for community, encouragement, and a reminder that you’re not alone, this is a great place to start.
LEMS Lifeline
The LEMS Lifeline connects you one-on-one with someone who truly understands your journey. Whether you’re newly diagnosed or facing a new challenge, you’ll be matched with a trained peer who has lived experience with LEMS. These conversations are private, supportive, and centered on listening, not fixing. You don’t have to navigate this alone.